Bone marrow donor urgently needed for my daughter-in-law. Mixed south Asian/Euro ancestry best chance
I desperately need your help to find a bone marrow donor for my daughter-in-law, Nikki Braterman who has acute myeloid leukaemia. Being Irish-European/Burmese, she has an extremely rare genetic make-up and we have not been able to find a match.
Please help by doing three things:
1- REGISTER as a potential bone marrow donor
A simple swab or spit test will then determine whether you’re likely to be a match. If you are, then donating bone marrow is a fairly standard procedure these days, almost hassle free for the donor (it’s not a whole lot different to giving blood) and with a good success rate.
Anyone who has European/Southeast Asian heritage – especially with a Portuguese name like De Souza or De Castro – would definitely be of interest. However, all are encouraged to be tested as Nikki’s match may be from someone outside her ethnic grouping or you may save somebody else’s life.
Please register with one of these organisations:
§ UK, aged 16-30: The Anthony Nolan Trust
§ UK, aged 18-49: The British Bone Marrow Registry
§ UK, aged 18-55: Delete Blood Cancer
§ Australia (there’s a large Anglo-Burmese community in Perth): Australian Bone Marrow Donor Registry
§ US: Be the Match
§ Canada: One Match
§ Worldwide: Bone Marrow Donors World Wide
2 – FORWARD this email to everyone you know, and especially anyone who has a Southeast Asian heritage
3 – SHARE my Nikki’s story via the social media channels below to help raise awareness
For more information please visit Nikki´s site at Perfect Ten Match
Thank you!
Posted on September 15, 2014, in Uncategorized and tagged bone marrow, Leukemia, transplant. Bookmark the permalink. 4 Comments.
Primate's Progress 
Wishing you every success, Paul. I cannot even begin to appreciate the anxiety you’re feeling.
Shouldn’t this be mandatory? Shouldn’t every person on earth be logged into this bank of potential donors from birth?
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I would not favour compulsion, but think that opt-out rather than opt-in should be the norm for organ transplants, and that bone marrow registration should be promoted, with registered potential donors getting priority for their own needs.
I take it you´ve registered as a potential donor, and urged your friends and family to do likewise. I´m too old, but am leaving my cadaver to Glasgow Uni medical school.
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Being in Brazil I tried to find a Burmese/Brazil association. Sadly, no such thing exists.
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Probably not, but thanks for your interest anyway. There may well be people you CAN help. To register, all you need to do is spit in a tube.
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